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Information in other languages www. Information for carers www. Information for children and young people www.


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Information for health and social care professionals www. Our information about MND research www. Facebook www. Twitter www. We provide a number of services to support people living with and affected by MND or Kennedy's disease. A friend gave me your number. It was the most important call of my life. This includes support for carers and health and social care professionals.

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The team can also direct you to our own and other services. Telephone: Freephone Email: mndconnect mndassociation. If you are living with or affected by MND, or Kennedy's disease, our services can support you.

See our services for more information. If you are looking for support locally, see our local support page. Membership is free for people with MND, or Kennedy's disease, their carers and partners. A variety of benefits are available including Thumb Print, our quarterly magazine. See our page to become a member. There are many other organisations and services that provide support and information. Using this guideline may help you achieve a better standard of care and provide supporting evidence if you need to make a complaint.


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Webpage: www. Always ask if you need any kind of health and social care information at a relevant appointment.

If you are disabled, you may require this information in a particular format, such as Braille or easy-read. It is now compulsory in England for health and social care services to provide a format you can access. For more details, search for accessible information standard at: www. The complexity of conditions like MND and Kennedy's disease means a range of health and social care professionals may be involved in your care. If you need to see a specialist, such as a speech and language therapist or neurologist, ask your GP or another member of the health and social care team for a referral.

You can also ask them for referrals to a palliative care team, if this is something you require. The co-ordinator or point of contact at MND care centres, networks or other neurological services can also help make arrangements. Find general information about healthcare services at: England: www. Find out if you are eligible for care services, equipment, emergency care support or carer support by having your needs assessed by adult social care services.

Ask for a needs assessment if you have any problems with disability. Contact your local authority for arrangements in England and Wales, or your local health and social care trust in Northern Ireland. Find our information sheets about social care at: www.

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If you are disabled, have a long-term illness or provide support as a carer, there are a range of benefits, entitlements, grants and financial support you may be qualified to claim. England and Wales: www. Skip to navigation Skip to content Skip to footer. Top links Housing benefit. Top links Template letter to raise a grievance at work. Top links Our pensions advice Write a letter to your creditors.

Where can I find the information I need? | MND Association

Housing Renting privately Finding a place to live Renting from the council or a housing association Mortgage problems Homelessness Discrimination in housing Renting a home Repairs in rented housing View all in Housing. Family Living together, marriage and civil partnership Ending a relationship Death and wills Gender violence Children and young people Looking after people Education. Top links Making a will Child maintenance - where to start Complaining about social care services What does it mean to have power of attorney? Child abuse - advice and support Advice for people affected by child abuse.

Law and courts Legal system Claiming compensation for a personal injury Discrimination Parking tickets Civil rights. Top links Making a small claim Help for victims of rape and sexual violence. Top links Getting a visa for your spouse or partner Getting a visa for family and friends Staying in the UK after a divorce If you've overstayed your visa or leave If you're in the UK illegally After you get refugee status View all in Immigration.

NHS and adult social care complaints Find out how to complain about your doctor or health visitor. Top links Find your local Citizens Advice Volunteer with us Jobs in our network Press releases Our blogs Read what we're saying about a range of issues. England This advice applies to England: England home Advice can vary depending on where you live. Sick or disabled people and carers.